Every day remains a wandering road

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Re: Every day remains a wandering road

Post by Greensprout on Wed May 16, 2018 4:56 pm

I do believe estradiol levels were on the requisition. Any from what I recall, you’re still not yet post menopausal? My last was 7 months ago, so this may be my year ...or not.
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Re: Every day remains a wandering road

Post by marcadav on Wed May 16, 2018 7:04 pm

I met the one year without a period in March, so I'm finally post-menopausal at 61 years old. Odd thing was, I had regular periods even when I had undetectable estradiol levels (in my mid 40s), as well as while on HRT with estradiol levels in the very low end of the post-menopausal range.

Do you recall if FSH was tested?

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Re: Every day remains a wandering road

Post by Greensprout on Wed May 16, 2018 7:12 pm

Marcadav, I think so, cant remember for sure.
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Re: Every day remains a wandering road

Post by Greensprout on Wed May 16, 2018 7:15 pm

So far, from what I hear, (though I havent seen the numbers myself), there are no indicators of an autoimmune process, which I half expected there would be. Perhaps in hope of an easy answer. So far, not so much.
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Re: Every day remains a wandering road

Post by Meant2Move on Wed May 16, 2018 7:17 pm

Having your husband attend as a note taker is an excellent idea, then you can talk and strategize together, as well as with your health care providers.
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Re: Every day remains a wandering road

Post by Greensprout on Wed May 16, 2018 9:59 pm

Thanks,M2M. Is a strange place to find myself in. I do trust my healthcare team, so do believe they have my best interest at heart. In the meantime, I am now on 6th week of sick leave, and dealing with side effects of reducing some meds while adding others. Not a good place to be.
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Re: Every day remains a wandering road

Post by Lovebird on Tue May 22, 2018 12:11 pm

(((HUGS)))
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Re: Every day remains a wandering road

Post by tomi1000 on Tue May 22, 2018 7:35 pm

oh goodness - why do these things take so long to sort out? I'm sorry you are not in a good place with meds. Please don't bother counting weeks on sick leave - you need to take as much time as your mind/body needs to sort through all this and work with your medical team to find solutions.

more ((hugs))
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Re: Every day remains a wandering road

Post by Pedidoc on Wed May 23, 2018 8:16 am

It has been a bit since you have posted, GS. I hope you are doing okay. Thinking of you daily.
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Re: Every day remains a wandering road

Post by Narrowminded on Wed May 23, 2018 9:15 am

Sending hugs here too.
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Re: Every day remains a wandering road

Post by Greensprout on Wed May 23, 2018 8:02 pm

Appreciate all your thoughts. Still getting by, today was actually a much better day mood wise than most, despite an 11 hour restless sleep that again left me waking unsetttled and unrested.

Tomorrow afternoon is the case conference. Am nervous about it, but will have to see what happens. As mentioned before, hubby is accompanying. And I have psychiatrist appt just prior.

Summer has arrived, VERY hot here, temps around 30C (86F)...things are really starting to green up and grow. Hubby put some flowers in out boxes last weekend, I picked up herbs, tomato and cucumber seedlings to plant this weekend. Will have to rely on hubby, as I still have the splint/half cast on.

Hoping for a positive outcome tomorrow. Suspect I’ll have trouble falling asleep tonight, as I have for perhaps the past week.
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Re: Every day remains a wandering road

Post by tomi1000 on Wed May 23, 2018 9:20 pm

these things are always bigger and badder in our minds than they are in reality. That being said - do whatever you need to do to go into the meeting feeling calm. It's all about you and your needs. Smile Sending comforting thoughts.
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Re: Every day remains a wandering road

Post by Pedidoc on Wed May 23, 2018 10:01 pm

Will be sending extra positive thoughts tomorrow afternoon.
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Re: Every day remains a wandering road

Post by Narrowminded on Wed May 23, 2018 10:13 pm

Calming thoughts coming your way
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Re: Every day remains a wandering road

Post by The Walrus on Thu May 24, 2018 2:54 am

^^
\__/

^what they said! Thinking of you a lot and hoping for all good things.
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Re: Every day remains a wandering road

Post by Lovebird on Thu May 24, 2018 12:10 pm

Keeping fingers crossed that the conference goes well for you & a positive outcome.
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Re: Every day remains a wandering road

Post by Greensprout on Thu May 24, 2018 8:13 pm

Must admit I was feeling rather anxious this morning. Had appt with psychiatrist from 2-3, which is when the case conference started. Hubby met me, and we popped out for iced cappuccino before were were scheduled to join the team at 330.

Wasn’t as intimidating as I thought, though I certainly had a few moments of losing control of my emotions and crying, even a few (sort of embarrassingly) sobs. I know they are all here to help, and the plan forward seems reasonable. I will see GP on Monday, and know I won’t be going back to work for now. Some more med changes upcoming, plus adding Prazocin for nightmares/wild dreams. Just have to be alert for low BP in the am when I get up.

Hubby took notes, and was there for me when I cried. So there it is. I feel quite exhausted.

Have appt tomorrow afternoon for a Holter monitor, not sure if I’ll need to wear it all weekend or just 24-48 hrs. Very hot and humid here, thunderstorms all around but may or may not hit us.

Thanks for the support, I can use friends, for sure.
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Re: Every day remains a wandering road

Post by Meant2Move on Thu May 24, 2018 8:19 pm

Very glad that you feel the meeting went well and that you think the plan is good. I sure hope so and so hope that you start to get the relief and then the healing that you need.

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Re: Every day remains a wandering road

Post by Greensprout on Thu May 24, 2018 8:29 pm

Thanks, M2M, much appreciated. Definitely mentally drained this evening.
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Re: Every day remains a wandering road

Post by Narrowminded on Thu May 24, 2018 11:25 pm

GS it sounds like a really good meeting and a bonus that DH was there for you when the going got a bit tough. I’m happy that this puts everyone on the same page with your healing.

Hoping the new med allows for better, more restful sleep. That will help everything else to feel better as well.

Here for you.
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Re: Every day remains a wandering road

Post by Greensprout on Fri May 25, 2018 12:15 am

Thanks, NM. Hope things get better... psychiatrist’s thought is that if sleep isn’t good, a lot of other things wnn’t be, either. Next week should be getting the oral appliance from dental to aid the snoring issues.
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Re: Every day remains a wandering road

Post by The Walrus on Fri May 25, 2018 3:01 am

Even though I am in a totally different situation, I got a little teary myself reading your account - I've so much of the same experience - crying, sobbing even (okay, a lot of sobbing), nightmares. Maybe pain is pain...but luckily DH has been there for me. Hope things continue upward!
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Re: Every day remains a wandering road

Post by Rig D on Fri May 25, 2018 7:18 am

Cheering you on. No advice, but lots of support.
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Re: Every day remains a wandering road

Post by perennialpam on Fri May 25, 2018 10:33 am

Been thinking about you GS and hoping for the best with that appointment. Good that DH joined you and showed his support.

Have a good weekend.
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Re: Every day remains a wandering road

Post by tomi1000 on Fri May 25, 2018 4:43 pm

I am so happy to hear the meeting was productive and a good plan is in place. Yeah! for hubby stepping up and offering his loving support.

Crying in public is hard - part of our societal taboo's I guess. Sobbing - can be embarrassing -- but its just natural and real. Emotional pain has to have an outlet -- crying, sobbing, ugly crying Smile it all offers a release when the pot gets to boiling too much.

Wouldn't it be wonderful if we could cry in public as easily as we laugh? Its all just different forms of emotional expression, not good or bad. Smile

Hoping for progress and good results to come!
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Re: Every day remains a wandering road

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